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International Speakers



Aileen Antolin
Vice President, Philippine Foundation for Breast Cancer

It was in 2009 when Aileen was unceremoniously drafted into breast cancer advocacy. Her then 65 year old mother, a retired public school teacher was diagnosed with stage 2B breast cancer. Her nursing education she realized, did not prepare her for how to care for her mother. A month after surgery, chemo treatments were recommended. The overwhelming cost of the treatment prompted Aileen to ask if there was a way to get discounted care. They were sent to the Breast Care Center where Philippine Foundation for Breast Care Inc. holds office.

Aileen was relieved that her mother qualified to be a beneficiary of the free chemo treatments courtesy of PFBCI's partnership with another NGO. It was those visits to the breast care center with her mother for consult and treatments where she learned of the many struggles that women with breast cancer had to endure. Having gone through the same difficult process of finding financial assistance for treatments, Aileen realized she can do something for the advocacy. More filipinas need to know there is hope in that quaint little room in the OPD building.

She started volunteering her time listening to the stories of these women and finding that there is still so much that need to be done in order to give more women a chance at better and timely treatments. In one of her researches she found that there wasn't much focus given to ordinary filipina with breast cancer.



Whenever breast cancer was talked about, it was celebrities and famous women who were given the opportunity to share their journey with cancer. It was hard for PFBCI women to relate to the stories of women who can afford to go to the best doctors and avail of the best treatment protocols. Aileen knew she needed to give these women a chance to tell their story and eventually open a door for corporations, organizations and companies who have the heart to support them.

In 2010, PFBCI had a corporate make over. Aileen spearheaded a photo exhibit with well known photojournalists in the country chronicling the lives of breast cancer patients. These photos became a story book for the world to read and understand the plight of ordinary pinays with breast cancer. Her role as public relations officer and then later communications officer gave Aileen the opportunity over the radio, tv, print and social media to create awareness for breast health among women. These opportunities also became vehicles for would be partners and donors to find the organization. Suffice it to say that the outside world started to notice. In the last 8 years support have regularly come from faithful partners, friends and collaborators through minimal marketing and exposure costs.

To date Aileen serves as Vice President of the organization and continues to give her time and everything she can to continue improving the chances of women to have quality life inspite of the difficult journey with the disease. Through her example she wanted the world to see that an ordinary housewife and mother like her can do something to make a difference in the lives of many. As a follower of Jesus, she continues to pour herself into the advocacy believing that one day no filipina will die of breast cancer.



Ait-Allah Mejri
President Director of PT Roche Indonesia
Public Health Physician
Jakarta, Indonesia

Dr Ait-Allah Mejri is the Managing Director of Roche Pharmaceuticals in Indonesia. He has over 26 years of experience in the pharmaceutical industry in multiple roles and on four continents. He trained in medicine and public health. He has an interdisciplinary background and a passion for engaging in research, policy, and advocacy on public health policy-related issues. He is the instigator of the ACTION Study (encompassing 8 countries in South East Asia and 10’000 cancer patients). Prior to that he participated in several regional initiatives like eradicating Hepatitis C in the Middle-East and scaling up integrated cervical cancer screening with HIV/AIDS services in health facilities in Tanzania. More recently, he was involved in “Access Accelerated”, a global initiative with 23 biopharmaceutical companies, the World Bank and UICC to address the rise of NCDs. Its overarching aim is to work towards the United Nations Sustainable Development Goal target to reduce premature deaths from NCDs by one-third by 2030.



Alito Soares
Director of Department of Surgery,
Hospital Nacional Guido Valadares
Dili, Timor-Leste

Talk Abstract: Breast Cancer Control in Timor-Leste
Author
Dr. Alito Soares, Hospital Nacional Guido Valadares (HNGV)

Introduction
Timor-Leste is a lower-middle income country currently entering a period of rapid economic and social development, assisted by political stability and a progressive population. Total population is 1.2 million, with three-quarters living in rural areas and one-fifth in the capital. The progress includes development health system in managing the burden of non-communicable diseases such as cancer.

There is no systematic cancer reporting in the country, however manual records indicate breast cancer about 10% workload for the general surgery. Majority of breast cancer present with stages stage III and IV. It is estimated that at least 50% breast cancer patients treated at HNGV are palliative, with over 80% mortality overall.

Objectives
Timor-Leste National Breast Cancer Control (TLNBCC) project was established in 2017. The objective is “Improving Breast Cancer Outcomes in Timor-Leste” through cancer control involving prevention, early detection, diagnosis, treatment.


Materials and methods
TLNBCC has four elements: 1) community education of early detection and awareness, 2) health professional education around the signs and symptoms of breast cancer and prompt referral, 3) improving diagnostic and treatment facilities at HNGV, and 4) developing a palliative care service.

Results
HNGV single tertiary care provided breast clinic consultation since 2015; total 249 women are with breast cancer they present with advanced stages.

Discussion
There are very limited cancer services in country, with no histopathology, radiotherapy and chemotherapy. Immediate action to improving diagnostic and treatment facilities at a national level will make a significant impact to improve breast disease. Early referral, increasing community awareness, acceptance treatment will increase surgically curable disease.

Conclusion
Community awareness, health professional education, prompt referral, along with developing the diagnostic, treatment facilities at a national level are the foundations for improving breast cancer outcomes in Timor-Leste.



Allison Ekberg Dvaladze
Director, Global Strategy, Partnerships and Advocacy
Women’s Empowerment Cancer Advocacy Network(WE CAN)
Breast Cancer Initiative 2.5 (BCI2.5)
USA

Allison Dvaladze, MPH is Director of Global Strategy, Partnerships and Advocacy in the Division of Medical Oncology at the University of Washington in Seattle, Washington. She supports multiple global cancer initiatives based at the Seattle Cancer Care Alliance and Fred Hutchinson Cancer Research Center including the Women’s Empowerment Cancer Advocacy Network (WE CAN), a network for breast cancer survivors and Breast Cancer Initiative 2.5 (BCI2.5), a global campaign to reduce disparities in breast cancer outcomes. Her current work includes the development and assessment of tools for cancer control planners, advocates and clinicians intended to support the design and implementation of breast cancer control programs across the cancer continuum from planning through palliative care. Ms. Dvaladze’s research interests include perceptions of breast health, barriers to detection and treatment of breast cancer, cancer advocacy and cancer support networks. She has a BSFS from the School of Foreign Service at Georgetown University and an MPH in Global Health from the University of Washington.

Talk Abstract: Moving from supportive care to advocacy
More than half of new breast cancer diagnoses and 62% of cancer deaths globally occur in low- and middle-income countries (LMIC). Higher breast cancer case fatality rates in LMICs have been attributed to a lack of awareness regarding the benefits of early diagnosis and treatment, late stage diagnosis and limited access to care. Advocacy, education, access to treatment and survivor support are integral to addressing the growing burden of women’s cancers worldwide.

Breast cancer advocacy has played a key role in bringing the public’s concerns about cancer to policymakers and advancing breast cancer early diagnosis and care in high-income countries. Cancer advocacy in LMICs is growing and has the potential to play a role in advancing access to cancer care for patients, but remains less developed. However, with evidence-based information and advocacy training, survivors/advocates can help dispel damaging myths and misconceptions about cancer, reduce stigma, address barriers to care and improve survivorship.

Talk Abstract: Phased Implementation for Breast Cancer Management
A review of breast cancer control efforts in low-resource settings identified the need for a model to bridge the gap between evidence-based planning and the implementation or scale up of breast cancer diagnosis and treatment programs. Based on multiple situational analyses of breast healthcare in different resource settings, we developed a phased implementation model for breast cancer management appropriate to any resource setting. The model, based on the BHGI resource-stratified guidelines, outlines an adaptable framework for stepwise implementation of health system requirements across the continuum of care. Of note is the establishment of successful and systematic management of clinically detectable (palpable) breast disease before implementation of population-based screening. The phased approach is intended to guide policymakers and clinicians in the development of effective and sustainable systems for improved breast healthcare delivery in low-resource environments.

Foundational Prerequisites: Landscape analysis, standardized protocols and guidelines, functional referral system and trained healthcare workforce;
Phase 1 (Management of palpable disease): Systematic triage and management of palpable (symptomatic) breast disease;
Phase 2 (Pathways): Strengthening of resource-adapted patient-centric care pathways and reducing access barriers;
Phase 3 (Scale up): Scaling up of targeted educational interventions for both public and health care staff including awareness, clinical assessment and clinical breast examination (CBE) to promote early diagnosis of clinically detectable disease; and
Phase 4 (Upgrading imaged-based diagnostics): Systematic upgrading of image-based diagnostic systems (technology and training) for management of non-palpable disease as a prerequisite to image-based (mammographic) screening.

This is the first in a forthcoming series of models intended to help bridge the gap between evidence-based planning and implementation and guide systematic improvements in breast healthcare management in low-resource environments.



Ann Steyn
Board Member, Reach to Recovery International (RRI)
Board Member, Union for International Cancer Control (UICC)
Cape Town, South Africa

Ann Steyn, breast cancer survivor is the Immediate Past President of Reach to Recovery International, a position she held from 2007--2013

As the National Coordinator of the South African RRI programme she became aware of the needs throughout Africa of not only offering emotional and practical support to breast cancer patients; but also breast cancer awareness programmes to help reduce the prevalence of late stage presentation.

As the RRI member responsible for Africa she has had the opportunity to address some of these problems. With the help of a grant from Susan G Komen for the Cure she has been able to train volunteers from 14 African countries. As their work is acknowledged so their role grows in helping to form suitable breast health policies in their countries.

In 2014 she became the spokesperson for the newly formed Advocates for Breast Cancer (ABC) a coalition of 7 organizations all with an interest in breast health. She is on the Advisory board of the Global Focus on Cancer and on the board of People Living with Cancer (PLWC)

Ann’s wish is to see supportive care available for all breast cancer patients worldwide, with all patients having the right to available, affordable and accessible breast health treatment.



Budiastuti Sumilak Wening
Vice Chairperson, Indonesia Breast Cancer Foundation

Budiastuti Sumilak Wening, or known as Ning Anhar, 72 years of age, is the Vice Chairperson of Yayasan Kanker Payudara Indonesia/YKPI (Indonesia Breast Cancer Foundation/IBCF). She is a breast cancer survivor herself for these last seven years and a thyroid cancer survivor too. She is known for her spirit in developing breast cancer awareness programs for Indonesian women.

Her fight against breast cancer has inspired her to create cancer prevention and support acts through the Foundation as a nonprofit organization for healthy living and social responsibility, focusing on breast cancer prevention, support and training.

When the Foundation was established in 2003 it was known as Yayasan Kesehatan Payudara Jakarta/YKPJ (Jakarta Breast Health Foundation). In January 2015, the Foundation changed its name to Yayasan Kanker Payudara Indonesia/YKPI (Indonesia Breast Cancer Indonesia/IBCF) and expand its mission to provide breast cancer awareness and promote early detection to women all over Indonesia.

The Foundation is the only Breast Cancer Foundation in Indonesia which provides free breast screening through its Mobile Mammography Unit to women communities in Jakarta and its surroundings.

In September 2014, the Foundation has been accepted as a member of the Reach to Recovery International (RRI) and in December 2016, the Yayasan Kanker Payudara Indonesia became a member of the Union for International Cancer Control (UICC).

Since 2015, Ning helped the Foundation to conduct two International Certified Training Programs for breast cancer survivors peer support volunteers as the responsibility of the Foundation being a member of the RRI.

As a survivor and the Vice Chairperson of the Foundation she pays a lot of attention on the importance of creating education and support programs to lift Indonesian women spirits to fight cancer and reduce number of breast cancer in advanced stage cases and deaths. She also emphasized on the importance of executing early detection steps to prevent late stage diagnosed of breast cancer.

Together with Foundation she plays an important role in developing cancer informative programs, focusing on breast cancer, to increase Indonesian women awareness to recognize its sign and symptoms, early detection steps, and referring them to go to the doctor.



Carman Kwok
Advanced Practice Nurse (Palliative Care),
Caritas Medical Center, Hong Kong

Carman Kwok is an Advanced Practice Nurse at Caritas Medical Centre in Hong Kong. She first completed Bachelor of Nursing at Edith Cowan University in Western Australia in 1995. Carman obtained a double master’s degree in Primary Health Care and in Public Health. Over the past 20 years, she has undergone specialty training in respiratory nursing, critical care nursing, community nursing, hospice and palliative care nursing. Carman has professional interests focus on palliative care. In 2012, she received Postgraduate Diploma in End of life care from the Chinese University of Hong Kong and obtained outstanding free paper presentation Award from Hong Kong Palliative Care Symposium. Carman is actively involved with voluntary service in community. She was honored with awards for her sustained contributions including Certificate of Commendation and Silver Award by Hong Kong Red Cross in recognition of her meritorious service for humanitarian work in 2008, Bright Achievement Award for the project on Health Promotion in Community by Hong Kong Hospital Authority in 2010, Gold Award for volunteer service to the community by Hong Kong Social Welfare Department in 2014, and Outstanding Women Volunteer Award by Hong Kong Young Women's Christian Association (YWCA) in 2015. Carman has been working in palliative care specialty since 2011, as well as being involved in the provision of clinical and consultative services. Currently, she just completed her Doctor of nursing program at the Chinese University of Hong Kong.

Talk Abstract: Communication and counselling skills in cancer and palliative care
Communication is essential for the provision of high quality patient-centered care. Effective communication in cancer care between the health care professionals, cancer patients, and their families has a positive impact not only on clinical outcomes but also on their experience of care. Poor communication has adverse impact on patients’ emotional health and their satisfaction with health care. Psychosocial care is one of the most important aspects of cancer and palliative care. Health care professionals need to develop good communication and counselling skills in order to be effective in providing such care. Recognizing, understanding and responding to patients’ feelings and concerns effectively can influence their emotional health. Good breaking of bad news can enhance a patient and family's coping abilities. Poor breaking of bad news can have a profound adverse effect on a patient and family's functioning and anticipatory grief response. This workshop aims at improving effective communication and counselling skills in health care professional during goals-of-care discussions and giving bad news. The practicing session promotes the transfer of knowledge and skills into practice. The focus of workshop is not only concerned with developing communication abilities but also supporting patient-centered care.



Carolyn Taylor
Founder/President of Global Focus On Cancer (GFC)
Patient Advocate
New York, USA

Carolyn Taylor, is the founder and president of Global Focus on Cancer (GFC), a non-profit organization whose mission is to act as an agent of simple and effective change to help reduce the global burden of cancer through programs in cancer awareness, advocacy, support and networking in countries where access to information about cancer is critically lacking. Carolyn is a global cancer care advocate, serves as a content expert with the Women’s Empowerment Cancer Advocacy Network, a co-chair, organizer and speaker for global cancer symposiums, she sits on ASCO’s Gynecologic Cancer Guidelines Committee and was a contributing author to the Lancet series ‘Health, Equity and Women’s Cancers’ [Nov 2016]. In addition to her work with GFC, Carolyn is a professional photographer and cancer survivor, who uses her talent and personal passion to share images that remind us that regardless of race, religion, nationality or economic status, we are all one in the battle against cancer.

Talk Abstract: Optimizing resources: introducing a peer-to-peer support program to assist with patient navigation in Vietnam
In Vietnam, as in many resource limited environments, oncology clinicians are overly burdened and there exists a tremendous health literacy gap between patients and their health care team. Additionally, professional psycho-social support in the oncology space is critically lacking. Due to these constraints, cancer patients are often left uniformed, confused and ill-equipped to navigate the complexities of cancer treatment. Through Introducing a peer to peer support program for patients diagnosed with women’s cancers in Vietnam, GFC looks to equip patients with the knowledge and resources that could have a positive impact on their outcome, fill gaps in professional psychosocial support, and ease the burden on the overtaxed hospital staff.



Cynthia Chou
Professor of Anthropology,
C. Maxwell & Elizabeth M. Stanley Family Chair of Asian Studies
The University of Iowa, USA

Cynthia Chou is C. Maxwell and Elizabeth M. Stanley Family Chair Professor of Asian Studies and Professor of Anthropology at the University of Iowa. She received her Ph.D in Social Anthropology at the University of Cambridge, United Kingdom in 1994 and was awarded in 2011 the highest Danish academic degree of dr.phil. by the University of Copenhagen, Denmark in recognition of her work on the orang suku laut (sea nomads) and the indigenous Malays in Southeast Asia in general. In collaboration with the project The Long Ride 2014 – Singapore to Sweden, undertaken by National University of Singapore breast cancer surgeons Dr. Philip Iau and Dr. Mikael Hartman to raise breast cancer awareness across Asia, she organized and directed a team of area specialists and anthropologists to carry out a concomitant study on the diversity of breast cancer meanings in Asia. Findings of this pioneering work have been jointly published in 2018 by the Nordic Institute of Asian Studies in Denmark and the National University of Singapore Press in an edited volume entitled, Breast Cancer Meanings: Journeys across Asia.

Talk Abstract: Cancer Fatalism and Religion in Breast Cancer
Breast cancer is a life-altering disease. It challenges one’s worldview, one’s self, and one’s future. Religion and spiritual beliefs are often relied on to facilitate adjustment to cancer through their effect on existential concerns, including one’s personal search for the meaning of hope, life and death.

Talk Abstract: Breast Cancer Meanings in Asia
This paper presents conversations across Asia with breast cancer patients, their caregivers, doctors, traditional healers as well as just ordinary men and women on the subject of breast cancer meanings. Through the stories as told by local people in Asia about how they think and talk about breast cancer, as well as how they respond to the disease, insights on breast cancer meanings emerge. These offer understandings into how local contexts shape those meanings and life courses.



Dorothy Chan
Professional Consultant,
Nethersole School of Nursing
Faculty of Medicine, The Chinese University of Hong Kong

Dr. Dorothy Chan is currently a Professional Consultant of the Nethersole School of Nursing, Faculty of Medicine, the Chinese University of Hong Kong, teaches both undergraduate and postgraduate programmes. Dr. Chan received her Bachelor and Master of Nursing degree from the University of Hong Kong and her Doctor of Philosophy (Nursing) degree from the Chinese University of Hong Kong. Her research interests focus on cancer prevention, model development and symptom management for breast cancer patients after surgery. Dr. Chan has also published in international refereed journals to share the knowledge and findings from her research.



Gaurav Agarwal
President Elect at Breast Surgery International (BSI)
Professor of Endocrine & Breast Surgery
Sanjay Gandhi Postgraduate Institute of Medical Sciences
Uttar Pradesh, India

Dr Gaurav Agarwal, president-elect of Breast Surgery International (BSI), is a Professor of Endocrine & Breast Surgery at SGPGIMS, Lucknow, and the convener of SGPGI Breast Health Program. His innovative approach has made high-quality, holistic, yet low-cost breast cancer treatment available at SGPGIMS. He has been organizing the popular “SGPGI Breast Courses” over 2 decades, and has trained numerous fellows. In over 2 decades of surgical practice, Dr Agarwal’s clinical interests include multi-disciplinary breast care, oncoplastic breast surgery and sentinel lymph node biopsy. His clinical & basic research interests lie in breast oncogenesis and outcomes, where he has numerous research grants. He has published >170 original scientific papers in high impact factor journals, with >4000 citations on GoogleScholar, h-score:33; i10 score: 70; RG score:42.1, making him one of the highest rated contemporary surgeon-scientists in the country. He has served, in past or currently, on editorial board of numerous high-impact journals including World journal of Surgery, and Intl J of Endocrine Oncology.

Professor Agarwal enjoys a reputation of being a key opinion leader in Breast surgery and oncology in India. He has delivered more than 200 invited talks and orations, and has received numerous awards including International guest scholarship of American College of surgeons, UICC-ICRETT fellowship and numerous best paper awards. He has been part of various expert committees, including the Govt of India expert consultative group on breast cancer screening, and was instrumental in producing the first draft of Breast & Cervical cancer screening guidelines of MOH, Govt of India in May 2014. He is a board member of Indian breast cancer repository, has served as council member of the International Society of Surgery (ISS), and is a member of numerous societies including ASCO, ASBD, ISS, BSI, ASI, IASO. Dr Agarwal is a founding member of the Association of Breast Surgeons of India (ABSI), which he has served as Executive member for two terms, and as the Director-education(NZ, 2015-17). He has organized ABSI-Breast surgery training modules in various institutions in North India, and the ABSI skills-course Feb-2014. He planned and conducted the very popular ABSI consensus panel on breast cancer management, which are now published as 2016 Indian guidelines for breast cancer management.

Prof Agarwal is the president-elect (2017-2019) of Breast Surgery International, and has served as secretary of Breast Surgery International (BSI) during 2005-2011. He has worked relentlessly to make BSI a truly international organization representing breast surgeons from across the globe, which took breast surgery practice, education and collaborative research to various developing countries.



Georgina Lee
Breast Cancer Survivor
Singapore

Grateful breast cancer survivor since 2010 from Singapore.

Living life to the fullest, active in community & charity work.



Imjai Chitapanarux
Professor, Faculty of Medicine, Chiang Mai University
Chair of Suandok Breast Cancer Network
Thailand

Dr. Chitapanarux is professor and Deputy Head of Department of Radiology at Faculty of Medicine, Chiang Mai University and Chair of “Suandok Breast Cancer Network” which she had founded since 2008. After completing her medical degrees and radiation oncology residency training at Chiang Mai University, she accepted a clinical research fellowship at University of California at Los Angeles. She returned to Chiang Mai University dedicating 20 years of her career to breast and head and neck cancer radiotherapy. After treating many breast cancer patients, she and her colleagues founded “Suandok Breast Cancer Network”, the non-profit organization to improve quality of life of breast cancer patients at all stages by providing increase access and proper treatments.



Ireal Traisarnsri
Art for Cancer by Ireal
Nakhon Pathom, Thailand

Miss Ireal Traisarnsri is a founder of ART for CANCER by Ireal; a social enterprise stands for a better quality of life of cancer patients in Thailand by using art, design and creativity as a medium to share inspiration and create the value of life to everyong in the society. She holds the Master of Arts, Design Management with Distinction and Best Postgraduate Student in Design (Prize awarded in Design) from Northumbria University, United Kingdom in year 2014.

She found ART for CANCER by Ireal since 2011 and has been spending almost 6 years as a Director and Fundraiser of the charity by using art as a channel to convince people to support and participate in. Until now, she has raised funds to support underprivileged cancer patients of Thai public hospitals more than 6,000,000 Thai Baht. In year 2017 ART for CANCER by Ireal becomes a Social Enterprise to be sustainable, create more social impact and to build community of cancer patients in order to improve their quality of life in terms of both financial and emotional supports.

Her inspiring story was published to the public and she was invited by many TV programs in Thailand to share her direct experience on cancer, attitude of living, and her inspiring project. Moreover, she is regularly be invited as a speaker for Thai public hospitals to share her experience and encourage people who live with cancer.

Special Lecture: The Survivor Planner: Plan Your Survivor Journey
Ireal Traisarnsri is living with Metastatic Breast Cancer. She is inspired to help other cancer patients cope with the disease through the right understanding and attitude. Her motivation and mission is to share her journey with others. The Survivor Planner is one of the projects that she and her friend are proud to share with all cancer patients.

No matter what stage of cancer they are in, we hope that this planner will help the patients learn, accept, understand, and be able to overcome cancer and even if they don’t, they will learn how to live comfortably with cancer and have a better quality of life. This is my definition of Survivor.



Jane Brock
Chief of Breast Pathology,
Brigham and Women’s Hospital and Dana Farber Cancer Institute
Assistant Professor of Pathology,
Harvard Medical School
Massachusetts, USA

Jane Brock is an Assistant Professor of Pathology at Harvard Medical School and Chief of Breast Pathology at Brigham and Women's Hospital (BWH) and Dana Farber Cancer Institute (DFCI), Boston. She covers both general surgical pathology and a high volume subspecialty breast pathology service including institutional consults for DFCI. She evaluates pathology for breast cancer clinical trials running at the DFCI and has focused her academic research on pathologic prognostic factors in breast cancer. She is the Medical Director of the BWH Surgical Pathology Grossing Room, and supervises the training of residents and fellows in breast pathology. She has given national and international talks and educational workshops to physicians and non-physicians on the subjects of breast cancer pathology, biopsy handling, and point of care needs in breast cancer diagnostics.

Plenary Lecture: Advocating standards for pathology in reporting in breast cancer
Quality cancer cares requires and accurate cancer diagnosis and that the pathology report provide the prognostic factors required for treatment. At a minimum the required elements are tumor type, size, grade, presence of in situ carcinoma and extent, presence of LVI and lymph node status. By using a proforma and synoptic reporting, this improves the completeness of pathology reports. Having nationally mandated guidelines and standards for reporting will help drive improvements in all hospital reporting.



Julie Gralow
Director, Breast Medical Oncology,
Seattle Cancer Care Alliance
Professor of Medical Oncology Division,
University of Washington School of Medicine
Founder, Women’s Empowerment Cancer Advocacy Network (WE CAN)
Washington, USA

Julie Gralow is the Jill Bennett Endowed Professor of Breast Medical Oncology and Professor of Global Health at the University of Washington School of Medicine, a Member of the Clinical Research Division at the Fred Hutchinson Cancer Research Center, and Director of Breast Medical Oncology at the Seattle Cancer Care Alliance. Her area of research specialization is the relationship between breast cancer and the bone. Dr. Gralow is the SWOG National Clinical Trials Network Executive Officer for breast and lung cancer, and serves on SWOG’s Latin America Clinical Trials Initiative. She chairs ASCO’s Academic Global Oncology Task Force, co-chairs ASCO’s Resource Stratified Guideline Group, and is a member of ASCO Education Committee’s global health track. She is a Fellow of the American Society of Clinical Oncology and the American College of Physicians. She is co-founder, medical director, and team physician of Team Survivor Northwest, an exercise and fitness program for woman cancer survivors. She is also founder of the Women’s Empowerment Cancer Advocacy Network (WE CAN), a group dedicated to empowering women cancer patient advocates in low and middle income countries, and Co-Chair of the Secretariat for the Breast Cancer Initiative 2.5 (BCI2.5), a Global Campaign to reduce disparities in breast cancer care globally.



Kardinah
National Cancer Center
Department of Radiology
Dharmais Hospital
Jakarta, Indonesia

Name Kardinah MD
Date of Birth December 11,1960

Institution
Dharmais Cancer Hospital/
National Cancer Center,
Jakarta, Indonesia

Current position
Medical committee Dharmais Cancer Hospital
Chairman of Indonesian Women Imaging Society

Previous Activities
2007-2009 : Breast Health Global Initiative Project
2014-2016 : National Project Coordinator (IAEA)
RAS 6-076 : CT cancer staging
2014-2016 : National TC Project (IAEA) INS 6017
Implementation quality management in diagnostic and nuclear medicine .

Current Activities
2017 – 2018 : Project development on opportunistic screening :
multicenter studies (Dharmais Cancer Hospital Jakarta and Sardjito Hospital Jogyakarta)



Kate Vines
Founder and Head of Patient Care,
Rare Cancers Australia
New South Wales, Australia

Kate was born and educated in New Zealand and moved to Australia at age 17. She worked in various roles including retail and banking in her early twenties and then spent the next 10 years in sales and marketing roles successfully organising trade show events and product advertising campaigns for a major automotive repair supplier. Kate married during this time and had a son, Paul.

In 1991 Kate was diagnosed with a rare cancer – metastatic Medullary thyroid cancer and was forced to take extended leave during which time she underwent several surgeries.

In 2000, Kate established her own event company promoting motivational speakers in Australia. Kate successfully ran this business until 2006. In the following years, Kate worked at the Australian Retailers Association and also at Progressive Business. In 2012, Kate together with husband Richard Vines, formed Rare Cancers Australia. As Founder and Head of Patient Care, Kate’s main role is to provide support, guidance and information for patients and their families. Kate works diligently with government, clinicians and industry to ensure that rare cancer patients voices are heard.

Kate is an Associate Investigator on a number of clinical trials and research studies:

• Phase II Trial of Ipilimumab and Nivolumab for the Treatment of Rare Cancers (NCT02923934
• NOMINATOR: GENOmic MatchINg treATment fOr Rare cancers
• The PiGeOn Project: two inter-related longitudinal studies examining psychosocial, behavioural and ethical issues and outcomes in cancer genomic testing
• Patient support and advocacy leader - The Cancer Molecular Screening and Therapeutics (MoST) Program
• Member COSA Rare Cancer Executive Committee
• Member COSA Tele-trial Consortium

Talk Abstract
Whilst Australia has an excellent health system it struggles to deal with those diseases that have small patient populations such as rare cancers. In our work at Rare Cancers Australia (RCA) we are constantly asked to assist patients who are struggling to access high cost medicines and other treatments. In many cases there is no government funding for treatment and associated costs and Australia has no meaningful private insurance options.

This talk will focus on the number of ways Kate and her team at RCA use daily to help patients get the best possible treatment and also explain the strategies and infrastructure necessary to implement them. In particular, Kate will focus on:

• Communications and PR – How RCA uses traditional and social media to highlight the needs of patients both individually and as a group.
• Technology – How RCA has developed its web and other digital assets to help patients achieve their desired goals.
• Pharma Industry – How RCA has built effective and trusted relationships with companies that allow RCA to work with industry for optimum outcomes for patients
• Researchers – How RCA works with researchers to guide patients to appropriate and relevant clinical trials and research programs
• Patient Treatment Fund – How RCA has established and operated a sophisticated fund raising platform that has raised over A$2.5 Million to assist patients.

Kate’s talk will include specific examples of her work at RCA and allow ample time for audience participation and questions. It will also include a demonstration of some of RCA’s technology



Ma Lourdes Cortez
Chairwoman,
Philippine Foundation for Breast Cancer

Profile Coming Soon



Maria Imaculada Guterres
Maternal and Child Health (MCH) Program Manager,
Alola Foundation
Timor-Leste

Maria Imaculada Guterres (Macu) was born in Baucau municipality, Timor-Leste, in 1981. She grew up in Baucau with two brothers and three sisters. She attended Nursing School in 1997-2000 in East of Indonesia and graduated as a nurse. In 2007-2011 she graduated in Public Health in Dili, Timor-Leste.

In 2000-2001, she worked as a volunteer providing primary health care at BETHESDA Institution in Indonesia to serve the refugees. In 2001-2004, she worked at Dili National Hospital as a Nurse. Later on, she was offered an opportunity to work for the United Nation Mission in East Timor from 2004-2005 as a nurse at the UN Hospital in Dili.

In order to gain more experience in Public Health, she joined with the Alola Foundation in 2005, and worked as the National Breastfeeding Association Coordinator in all aspects of breast health. In 2009-2013, she was appointed as the Maternal and Child Health Coordinator. Since 2014 she has been the Maternal and Child Health Program Manager for the Alola Foundation. The role allows her to work in improving the health status of women and children in Timor-Leste. Apart from that, she was involving in the networking such as member of International Baby Food Action Network and International Federation for Home Economic. She is also a qualified national trainer for Infant and Young Child Feeding, which allows her to support the Ministry of Health training for Health workers.

In 2014 she was one of the Founders of HALIKU (Women’s cancer program) organizing the launch of HALIKU and the First Women’s Cancer Conference in Timor-Leste which involved around 800 people including ministries, institutions, students and media. She is also a member of the Timor-Leste National breast Cancer Committee.

Talk Abstract: Breast cancer awareness, education and support in Timor-Leste
Introduction
Timor-Leste is currently entering a period of rapid economic and social development, assisted by political stability and a progressive population. This includes development of a sustainable and independent health system to manage the changing burden of disease which will increasingly include chronic non-communicable diseases such as cancer. The majority of breast cancer patients still present with locally advanced and/or metastatic disease. The mortality of those treated at the National Hospital, is estimated to be at least 50%, with over 80% mortality overall.

Objectives
HALIKU, which means “I choose to be healed”, works under the maternal and child health program of the Alola Foundation, a local NGO that contributes to the reduction of maternal and child morbidity and mortality of women and children in Timor-Leste. Haliku’s objective is to increase women’s understanding on prevention, early detection and treatment of breast cancer.

Materials and methods
Haliku educates people on symptoms of cancer and contributing factors, promotes importance of regular breast self-examinations and attending health facilities as soon as symptoms of cancer are identified. HALIKU also targets media for raising awareness campaigns through community radio and newsletters, and distribution of brochures and pamphlets.

Results
Since 2016 80 women’s cancer prevention workshops have been conducted for community health volunteers, government and private institutions, female soldiers and schools students. Raising awareness campaigns have been conducted in 59 villages and exhibitions held at government institutions in 11 municipalities.

Discussion
The program has reached 8,500 people and has supported and referred 88 patients for treatment and well recognized at the country level.

Conclusion
As the only public awareness or early detection program in the region, the Haliku Program plays a vital role in helping to improve breast cancer mortality rates within Timor-Leste.


Michael Sieburg
Associate Partner and Vietnam Office Head for Solidiance

Michael Sieburg is an Associate Partner and Vietnam office head for Solidiance, an Asia-focused research & advisory firm. Michael is based in Ho Chi Minh City where he has lived for the past eight years but manages healthcare engagements acros Asia Pacific. Michael’s healthcare advisory work spans pharmaceuticals, medical devices, and private hospitals & clinics. Prior to joining Solidiance, Michael worked in New York City covering Southeast Asia as a macroeconomic / political risk analyst. He holds a Master of International Affairs, with a focus on Economic & Political Development from Columbia University.

Talk Abstract
Michael will draw on Solidiance’s healthcare project experience in Southeast Asia to discuss the region’s future healthcare funding gap and potential solutions to address it. Southeast Asian countries are facing an unprecedented rise in healthcare costs in the coming decade that will pose a major challenge to already strained public health budgets. However, in these challenges there also lies tremendous opportunity for these countries to become efficient healthcare nations and to build out a sustainable health sector. Michael will review the need to improve on resource allocation, prevention efforts, and long-term cost effective treatment while ensuring sustainable and efficient funding in order to be able to provide quality of life and health to the citizens of the region.



Mikael Hartman
Senior Consultant, Division of General Surgery (Breast Surgery),
National University Hospital (NUH)
Head of Breast Cancer Prevention Programme
Saw Swee Hock School of Public Health,
National University of Singapore (NUS)

A/Prof Mikael Hartman is a Breast and Trauma Surgeon at the Department of Surgery, National University Hospital (NUH), Associate Professor at the Department of Surgery, Yong Loo Lin School of Medicine and Saw Swee Hock School of Public Health, National University of Singapore (NUS). He received his medical training and completed his doctoral studies in the field of epidemiology at Karolinska Institutet, Sweden. He is leading the development of the Singapore Breast Cancer Cohort, the Singapore-Malaysia Breast Cancer Working Group, and the Breast Cancer Prevention Programme in the Saw Swee Hock School of Public Health. His specialty focuses on breast cancer etiology and prognostication, genetic contribution to breast cancer, clinical epidemiology and trauma. Currently, he serves as the Head, Division of General Surgery, Department of Surgery, NUH, the Assistant Dean of Research, Yong Loo Lin School of Medicine, NUS and Deputy Group Director of Research Office, NUHS.



Nguyen Dinh Tung
Associate Professor, Surgical Oncology
Vice Director of Cancer Center
Hue Central Hospital
President, Breast Cancer Society of Hue
Vietnam

Dr. Nguyen Dinh Tung is the Vice Director of Oncology Center at Hue Central Hospital and Associate Professor at Hue University of Medicine and Pharmacy. Dr. Tung graduated from the Hue College of Medicine and Pharmacy (1990), qualified for General Surgery (1992), Surgical Oncology (1994), Master of Medicine (2000) and PhD (2005). He continues to study at the US National Cancer Institute ( 2002) and as a visiting scholar at the University of Washington ( 2007), MD Anderson Cancer Center ( 2013) and Memorial Sloan Kettering Cancer Center ( 2016 ) . He has over 70 publications in peer reviewed journals, mostly focusing on breast cancer in Vietnam. He is an invited speaker at national and international conferences and was chairman of the SE Asia Breast Cancer Symposium in 2016, chairman of the International Breast Cancer Symposium in 2017, 2018. He specializes in cancer prevention, breast cancer surgery, breast reconstruction and intraoperative radiation therapy (IORT). Dr Tung becomes the Executive Member Board of Vietnamese Cancer Society ( 2010) as well as Vietnamese Society of Aesthetic Plastic Surgery (2017) . He has been a member of Breast Surgery International since 2009 and has served on the Development Committee for National Clinical Practice Guidelines for Cancer Management for Vietnam. Dr. Tung is the founder/president of the Breast Cancer Society of Hue, member of UICC. Established in August 2014, BCS was the first society for breast cancer control in Vietnam. Dr. Tung works closely with breast cancer support groups and NGO’s to promote health awareness and the early detection of breast cancer.

Talk Abstract: Disparities of Breast Cancer in Vietnam
In 2010, there was 12.533 new cases of breast cancer were registered, 64.2% late breast cancer was admitted hospital .Breast cancer screening is not included in health insurance .Between 2008 and 2015, the National Cancer Control Programme screened an estimated 100,000 women aged 30–54 for breast cancer.

There is 6 specialist oncology hospitals (public sector) and 43 oncology units in general hospitals. 63 provincial hospitals in 2008–2010 found that nine (14%) hospitals had no functioning pathology departments, 56.6% were diagnosed at Stage II, 27.1% at Stage III and 9.3% at Stage IV. Facility to diagnose are Ultrasound, hemotogram, CA 15.3, tumour biopsy or cytological tests . mammography , ER, PR, Her 2-Neu tests. MRI, PET –CT, some BRCA...

Capacity at provincial hospitals greatly varies. Treatment options across the country widely vary depending on geographic location, with a strong rural/urban difference . While most provincial hospitals officially provide surgical services, as of 2008 , 10 of them stated that they could not offer this service and regularly referred patients elsewhere .

There are 36 machines in whole country. Many provinces do not have access to any radiotherapy treatment facilities. In some cancer centers, still use the cobalt-60 external radiotherapy machines. Intensity-Modulated Radiation Therapy (IMRT) was sparingly used in Viet Nam.

Most chemotherapy agents are available, and this provides the principal treatments for cancer patients. 80 to 100% of chemotherapy is paid by government insurance . Within the current Law on Health Insurance : Cancer patients with insurance are reimbursed 80% of examination and treatment costs and 20% of costs are paid out-of-pocket. For certain drugs, however, only 50% of costs are reimbursed. Having to meet co-payments can therefore be highly restrictive .



Omar Z. Youssef
President, Breast Surgery International (BSI)
Professor of Surgical Oncology,
National Cancer Institute (NCI), Cairo University
Egypt

Dr. Omar Z. Youssef is currently working as full professor of surgical oncology in the national cancer institute (NCI), Cairo University.
He has been elected as president of Breast Surgery International (BSI) an integrated society of the international society of surgery.
He received his master degree in surgery in 1997 and pursuit his training, where he was trained as a fellow of plastic surgery in the department of reconstructive surgery in the European institute of oncology (EIO), Milan, Italy. Then, he worked as a senior resident of surgery in Institut Gustave-Roussy in Paris, France. He received his M.D degree in Surgical Oncology in 2002.

His subspecialty is oncoplastic and reconstructive breast surgery, with main research area in locally advanced breast cancer, and breast oncoplastic and reconstructive surgery. His main academic activities include teaching and training young surgeons in breast surgery, and the clinical management of breast cancer. He has several publications on breast oncoplastic and reconstructive surgery and has been invited and presented talks in these specialties in many international conferences.
He has successfully organized 6 successive international workshops in breast oncoplastic and reconstructive surgery in Cairo during the last 7 years in collaboration with the European School of Oncology and a well-known international faculty from UK, France and Italy.
He is a member of the editorial board of several regional and international medical journals.



Ong Kong Wee
General Surgeon at Mount Elizabeth Novena Hospital
Founding Head of the SingHealth Duke-NUS Breast Centre
Visiting Consultant at the National Cancer Centre
Singapore

Profile Coming Soon



Orajitt Bumrungskulswat
Assistant Secretary General,
Heart to Heart Foundation
Member of Advisory Board,
Global Focus on Cancer (GFC)
Bangkok, Thailand

Biography Mrs.Orajitt Bumrungskulswat. 62 years old, lives in Bangkok, Thailand, Married. Bachelor in Economics at Chulalongkorn University year 1977, Master of Science in Human Settlement Planning and development at Asian institute of Technology year 1983. Certificate in Housing Planning and Building at Institute for Housing Studies, the Netherlands year 1991. Training in Japan Health Insurance at Japan International Cooperation Agency (JICA), Japan year 2006.

Present organization/position Assistant Secretary General, Heart to Heart Foundation. Health Promotion Fund Committee Member in Informal Labor Strategic Development.

Working experience 38 years, in policy and plan analysis, civil society and community development, Social Investment Fund of the World Bank, Community Health Fund, Community Healthcare System, People and Patient Engagement and Consumer Protection in Health Insurance System, Local Authority Engagement in Health Insurance System. Patient centred healthcare Development and Patient Support Group and Network Development.

Expertise local and community development /strategic planning and advocacy, local and community fund management, people and patient engagement and empowerment, civil society development/networking, participatory monitoring and evaluation.

Talk Abstract: Disparities in Breast Cancer Outcomes in Thailand
Cancer in Thailand is becoming a significant health problem. It is the leading cause of death in Thailand. Breast cancer is female top cancer. It accounts for 47.8 % of all cancer diagnoses in women and major cause of death, about 4,500 patients last few years. There are 12,000 new breast cancer patients annual growth. Bangkok is 25.6:100,000. The breast cancer patients in year 2013-2015 in 3 schemes was estimated about 12,539 patients, lung cancer 10,281 people, cervix cancer 8,844 people and colon cancer 21,102 person. In year 2013, the Committee for Cancer Treatment Standard had approved the integration of cancer treatment standard of 3 schemes of health insurance for lung cancer, liver cancer, breast cancer and cervix cancer including the benefit packages for treatment and patient care. The Universal health coverage (UHC) provide quality healthcare services in curative, preventive, promotive and rehabilitation. The budget for cancer prevention, screening, medical treatment and palliative care account only 6% of UHC budget or 6 billion baht/year. Cancer patient can get access to cancer treatment services in different channels with free of charge under UHC. The remaining problems are the systematic referral system and the acceptable established standard treatment plan for each type of cancer in all cancer hospitals. The mortality rate of cancer is 104:100,000 which rank 91 in the world. Screening for breast cancer in the general and high risk population is, therefore, crucial for the prevention of this health problem. In year 2017, breast cancer incidence increased significantly in all regions, ranging from 3% to 7% increases per year, depending on region. Since year 2002, breast cancer screening campaigns were promoted, mostly in the form of educational awareness and knowledge. Available resources and infrastructure limit uptake of opportunistic mammography according to screening guidelines and limit the extent screening affects incidence for this cancer. Improvements in adherence to BSE and, particularly, CBE can aid in early detection to reduce morbidity and subsequently, mortality, from this disease.

Ramathibodi Breast Cancer Support club, objectives are to provide an opportunity for patients in the group to share their feelings and support each other. To increase knowledge of self-care during receiving chemotherapy and/or radiation. To be a resource for patients who want to learn how to solve the problems during treatment. There is equal opportunity for the breast cancer patients to join the Ramathibodi Breast Cancer Support Club.



Owen Ung
Director for the Centre for Breast Health
Head of the Breast and Endocrine Surgery Unit
Royal Brisbane and Women’s Hospital
Professor of Surgery at University of Queensland Medical School
Brisbane, Australia

Owen Ung is a breast and endocrine surgeon and Professor of Surgery University of Queensland Royal Brisbane Clinical School. He is currently a council member for the Royal Australasian College of Surgeons (RACS) and previous Chair of the Qld RACS Regional Committee and RACS examiner. He has recently been elected to Federal Council of the Australian Medical Association.

Owen is a committed clinician, researcher and teacher and has obtained extensive administrative and management experience through his various clinical leadership roles. He is the Honorary Secretary for Breast Surgery International Previous national representations include:
Board member of General Surgeons Australia (GSA), Chair of the Breast Section of the RACS and Chair of the Breast Group of the Clinical Oncology Society of Australia (COSA).
Board appointments: Specialist Services Ltd (medical specialist group), MIGA (medical defence organisation) and the Royal Brisbane and Women’s Hospital Foundation.

Talk Abstract: Updates on axillary staging. Sentinel lymph node biopsy in low resource setting
Sentinel node biopsy is entrenched as the standard of care for management of the axilla in breast cancer. It is associated with less axillary morbidity for superior predictability of axillary node involvement. It’s role has evolved in the presence of advanced breast disease, node positivity and the neoadjuvant setting. Areas of controversy exist still in these settings however.

New methods for localising the sentinel node and accuracy of these novel techniques will also be discussed.

Talk Abstract: Indications for neoadjuvant therapy in BCS and Mastectomy
For advanced breast cancer, neodjuvant therapy is preferred prior to optimising local control with loco-regional radiotherapy and mastectomy. There are instances when conservation for these patients may be considered but this would be exceptional and controversial. In contrast, for T2 and T3 tumours without advanced clinical features, a neoadjuvant strategy is a useful approach that may convert a requirement for mastectomy to a conservable situation. Careful pre-treatment planning, surveillence and monitoring of response is required. An area of controversy is the management of the clinically positive axilla pre-treatment that is sentinel node negative after neoadjuvant therapy.



Phuong Viet The Tran
Deputy Head, Department of Breast Surgery
Ho Chi Minh City Oncology Hospital,
Vietnam

Specialty: Breast surgeon- Oncology, Plastic and Reconstructive Surgery
Languages spoken: Vietnamese, English

Qualifications:
Medical School:
- University of Medicine, Ho Chi Minh City, Vietnam, 1992

Board Certifications:
- Specialization Degree level 1, Oncology Surgery, University of Medicine, Ho Chi Minh City , Vietnam, 1996
- Master of Medicine, University of Medicine, Ho Chi Minh City, Vietnam, 1998
- Specialization Degree level 2, Oncology, University of Medicine, Ho Chi Minh City , Vietnam, 2005
- PhD, Oncology, University of Medicine, Ho Chi :inh City, Vietnam, 2012

Fellowships:
- Head & Neck, MD Anderson Cancer Center, Houston, USA, 2000
- Reconstruction, Hanoi, Vietnam, 2006
- Breast Surgery, Korean Breast Cancer Society, Scholarship Severance Hospital, Seoul, Korea, 2008
- Breast Surgery, Guy’s and St Thomas Hospital, London, UK, 2009
- Breast Surgery, European Institute of Oncology, Milan, Italy, 2009
- Breast Surgery, Singapore general Hospital, Singapore, 2009
- Certificate of Completion of Ultrasound and Stereotactic and MRI guided Vacuum Assisted Breast Biopsy- Taichung Hospital, Chang-Hua Christian Hospital, Kaoshiung Municipal Ta-Tung Hospital-Taiwan-2016

Professional Experience
- Senior Consultant, Breast Surgery Department, Oncology Hospital, Ho Chi Minh City, Vietnam, 1999-2006
- Deputy Head of Breast Surgery Department, Oncology Hospital, Ho Chi Minh City, Vietnam, since 2006
- Senior Consultant, Plastic Surgery & Cosmetics Department, FV Hospital, since 2012

Special Clinical Interests:
Breast plastic and reconstructive – Breast cancer surgery-Minimally invasive breast procedure



Poonpit Thongchai
Breast Radiologist, Thanyarak Breast Center
Siriraj Hospital, Mahidol University
Bangkok, Thailand

• Speciality: Breast imaging and intervention

• Position: Radiologist at Thanyarak Breast Center. Siriraj Hospital

• Qualification & Education: Doctor of medicine, Faculty of Medicine (Thammasart Univ.) M.D., Grad.Dip. in Clinical Sciences, (Mahidol Univ.) Dip.Diagnostic Radiology, Faculty of medicine, (Mahidol Univ) Certificate of Clinical fellowship training program in Breast Imaging and intervation skil, Thanyarak Breast Center, Siriraj Hospital.(Mahidol Univ.)

• Areas of Interest: Automated Breast Ultrasound, Molecular Brast Imaging & Surgical Altered Breast

Talk Abstract: The Efficiency Of Automated Breast Ultrasound (ABUS) For Breast Cancer Detection In Dense Breast Women
Objectives : To investigate the detecting efficiency of the Automated Breast Ultrasound system (ABUS) for breast cancer detection, majority in women with dense breast tissue.

Materials And Methods : An institutional review board-approved this prospective study design. During 1st February 2016 - 30th June 2017, 1295 breasts from 673 eligible patients in both screening and diagnosis group were included. The diagnostic performance of ABUS alone and ABUS combined with mammography in detection of the cancer were compared with the performance of mammography (MMG) alone, MMG+HHUS, and HHUS alone. Four dedicated breast radiologists were independent review five arm of imaging modalities, the final assessment and lesion characterizations were record follow the BI-RADS imaging lexicon.

Results : The malignant was identified in 197 breasts. 46 cancers are from 761 breasts in screening group and 151 cancers from 534 breasts in diagnosis group. Majority of patient's breast density on mammography is heterogeneously dense breast 967 (74.4%). Most of malignancy pathology subtype is invasive ductal carcinoma 125(63.5%). The overall sensitivity of five modalities (MMG, HHUS, ABUS, MMG+ABUS and MMG+ HHUS) are 76.6, 94.4, 86.3, 88.8, 100. Overall specificity is 90.8, 81.1, 83.9, 83.8, 69.8. No interval cancer found in our study after 1 year follow-up with imaging and medical record from hospital database. The PPV are 59.9, 47.2, 49, 49.6, 37.2 and NPV are 95.6, 98.8, 97.2, 97.7, 100.

Conclusion : In women with dense breast tissue ABUS as a single modality for breast cancer detection has higher sensitivity when compared with mammography and higher specificity when compared to HHUS. DISCUSSION In the limited resource area, ABUS possibly be use as a single modality for screening breast cancer in women with dense breast tissue.



Preap Ley
Director of Surgical Department,
Sihanouk Hospital Center of HOPE
Phnom Penh, Cambodia

Education:
• General Medicine, National Medical University, Ulaanbaatar, MONGOLIA 1987-1995
• Bak Touk High School, Phnom Penh, CAMBODIA -1987
• Foreign language: English, Mongolia, Russia, and French.

Postgraduate Training:
• General Surgical Fellowship, Soon Chun Hyang University Hospital, Bucheon, South KOREA 2007-2008
• Diagnostic Endoscopy (Oesophago-gastro-colonoscopy, Bronchoscopy), HOPE Center, Phnom Penh-2009
• Surgical and Medical oncology, Chemotherapy training, Tata Memorial Hospital, Mumbai, INDIA-2012.

Academic Appointments:
• Assistant Professor of International University (IU) by Ministry of Health (MoH), Phnom Penh.

Employment History:
• Medical doctor, ICU department, Kompong Cham province hospital -1996
• Medical doctor, Srey Santhor district hospital, Kompong Cham province 1996-1998
• General Surgeon, General and Uro-Gynecological surgical department, Kossamak hospital, Phnom Penh 1998-2003
• General Surgeon, Surgical department, Sihanouk Hospital Center of HOPE, Phnom Penh 2003-Present
• Assistant Professor of Topographical anatomy and Operative Surgery of IU, Phnom Penh 2007-Present.
• Assistant Professor of General Surgical residency training course of UHS, Phnom Penh 2007-Present.
• Assistant Professor of Urological diseases of AIS, Phnom Penh 2013-Present.

Clinical Research:
• Laparoscopic surgery for early stomach cancer in SCH 2007-2008
• Cancer Registry in SHCH 2005
• Surgical protocol for Diabetic patients in SHCH 2008
• Surgical protocol for Thyroid diseases in SHCH 2009
• Hemophilia work up protocol and Surgery in SHCH 2010
• Brest Cancer Registry in SHCH 2011-2012
• Liver Hydatic Cysts Conservative Medical Treatments 2012
• Resectable HCC (Left lobectomy or Left lateral segmentectomy) cases in SHCH 2012
• Medical Doctor Thesis of “Breast Cancer Management in Low Resource Setting” in UHS, Phnom Penh 2012
• Breast Cancer Chemotherapy in Tata Memorial Hospital, Mumbai, India supported by AmeriCare and AstraZeneca.
• Helicobacter pylori epidemiology in SHCH 2013
• Breast cancer status in SHCH 2014.
• Outcome of subtotal gastrectomy with D2 lymphadenectomy of Gastric Cancer in SHCH 2014.
• Breast cancer managements in SHCH 2014.
• Breast cancer screening by Infrared Thermal Camera in SHCH. Cooperated with Ass. Prof. Yunyoung Nam, Soonchunhyang University (SCH), South Korea.
• Breast cancer screening by Infrared Thermal Camera in SHCH. Cooperated with Ass. Prof. Yunyoung Nam, Soonchunhyang University (SCH), South Korea. 2015
• Laparoscopic and open chplecystectomy in SHCH, comparable results. 2016
• Differentiated thyroid cancer managements in SHCH 2009-2014
• Antibiotic prophylaxis results for appendectomy patients in SHCH. 2016
• Colorectal Cancer status and managements in SHCH. 2017
• Breast Cancer status and managements in SHCH. 2017




Preetha Madhukumar
Senior Consultant Surgeon,
Division of Surgical Oncology
National Cancer Centre Singapore

Dr Madhukumar is currently practicing in National Cancer Centre Singapore.

Dr Madhukumar is a senior consultant surgeon in Singhealth Duke-NUS Breast Centre under Division of Surgical Oncology. She obtained her MBBS and Master of Surgery degree from India. She obtained FRCS from Royal college of surgeons, Glasgow in 1998. She started working in Singapore from 1999 and obtained her FAMS and specialist accreditation in Surgery in 2004. Since then she was working in Department of General Surgery, Singapore General Hospital (SGH) before joining National Cancer Centre Singapore, Department of Surgical Oncology. Her main interest is in breast cancer surgery including screening and detection, surgical management and follow up. Apart from the clinical interest she is very active in the educational field. She is a pioneer fellow of AMEI. She is actively involved in teaching medical students, residents, fellows and allied health professionals. She is also actively involved in breast cancer research activities.

QUALIFICATIONS
- MBBS (India), MS ( General Surgery)
- FRCS (Glasgow)
- FAMS (Singapore)



Richard Sullivan
Professor of Cancer & Global Health
Director of Institute, Cancer Policy
Director, Centre for Study of Conflict & Health
King’s College London (KCL)
King’s Health Partners

Richard Sullivan is Professor of Cancer and Global Health at Kings College London (KCL), and founding director of the Institute of Cancer Policy (ICP) and the Conflict & Health Research Group (CHRG) at KCL. Richard qualified in medicine and trained in surgery (urology), gaining his PhD from University College London. He was clinical director of Cancer Research UK for nearly ten years leading the UK’s clinical cancer research programming before moving in global health where he specialised in health systems in conflict and fragile settings leading a number of field missions for UN and other organisations in places such as Kosovo, Yemen, Eastern DR Congo and Afghanistan. His current research groups work on both global cancer policy and planning, as well as health systems strengthening for conflict & health. The ICP has a wide range of research programs from automated radiotherapy planning for low resource settings to use of virtual reality to augment pelvic gynae-oncology training, as well as national programs helping countries build affordable, equitable cancer control plans. The CHRG has been focused on the basic package of health services in Afghanistan, civil-military co-operation in health security, polio eradication and insecurity in Pakistan, and use of health intelligence in high security disease outbreaks. Richard has led, or been a member of, over 12 Lancet and Lancet Oncology Commissions and Series. He is currently co-leading a commission on the future of cancer research in Europe, cancer care in conflict, and global imaging. Richard is an NCD advisor to the WHO, Save the Children CIVMIL group, National Cancer Grid of India as well as coordinator of the Research for Health in Conflict capacity program across the Middle East and North Africa (R4HC-MENA r4hc-mena.org).



Soe Aung
President, Myanmar Oncology Society
Prof/Head (Medical Oncology)(RTD)
Current Prof. Emeritus, University of Medicine 1, Yangon
(ESMO) Global Policy Committee Member

Soe Aung, MBBS (Rgn), M.Med.Sc. (Internal Medicine) (Rgn), MRCP (UK) and FRCP (Edin), is currently serving as president of the Myanmar Oncology Society. He is also Professor Emeritus, University of Medicine 1; Visiting Professor, Defence Services Medical Academy; member of the European Society for Medical Oncology Global Policy Committee; special adviser to the Union Minister; secretary 1 of the National Cancer Control Programme (NCCP) Steering Committee; and vice-president 1 of the NCCP Human Resource and Palliative Care Sub-committee. He has served in various capacities in the field of oncology in Myanmar, namely, chairman of the Master of Medical Science (Medical Oncology) Post-graduate Course (2001–10); leader of the Clinical Research Unit (Oncology), DMR, Myanmar (1999–2010); leader of the hospital-based cancer registry unit, Yangon General Hospital (1996–2010); and Editor-in-Chief of the MMA newsletter (2008–10). He is the co-author or author of six international and 19 local publications and has made many oral presentations. He trained in medical oncology at Clatterbridge Centre for Oncology, UK, and at National Cancer Center, Tokyo.

Talk Abstract: Achieving better breast cancer outcomes in Myanmar
Myanmar has four cancer centres on the civilian side and two on the military side. Hospital-based cancer registry was first established in Yangon Cancer Centre in 1974. Since then either breast cancer or cervical cancer has always been the two most common female cancers breast cancer outnumbering cervical cancer on most of the occasions. Hospital-based registry data from three other civilian cancer centres also showed the same pattern. Myanmar has 14 states and divisions plus one Nay Pyi Taw Council. According to hospital based cancer registries, approximately 95% of cases treated at four main civilian cancer centres came from central 5 states and divisions and only approximately 5% of cases came from peripheral 10 states and divisions. This huge discrepancy in access to oncology health care between central and remote areas results from many factors which include lack of oncology health education, lack of awareness, difficulty in communication due to rough geographical terrains, poverty, social taboos and stigmatization, and misconception about the disease and treatment. For the same reasons, majority of cases that sought treatment tended to present in their late stages (III or IV) as well. According to the GLOBOCAN data (2012) we are seeing only about one third of patients we should see. Even then the workload is onerous due to lack of both human and material resources. To address all these issues, the Ministry of Health and Sports (Myanmar) has endorsed Myanmar Comprehensive Cancer Control Plan (2017-2021) and is also collaborating with WHO, IAEA, IARC, and other national and international stakeholders in implementing a costed National Cancer Control Plan in Myanmar. In order to achieve better breast cancer outcomes (and outcomes of all other cancers for that matter), Myanmar, being a LMIC, should emphasize more on prevention, screening, early diagnosis, and provision of basic essential services.



Sok Bouy
Manager, Communication and Development Department
Sihanouk Hospital Center of HOPE
Phnom Penh, Cambodia

Education:
• Studying ACCA, International Training Program, Cambridge Education Limited (CamEd), January 2012
• Achieved Master of Development Management Degree from Norton University, Phnom Penh, December 2010.
• Achieved Bachelor in Management Information System Degree from National University of Management, Phnom Penh, 2006.

Institute: Sihanouk Hospital Center of HOPE
Department: Communication and Development
Position: Head of Communication and Development Department

Duties and Responsibilities:
A. Leadership
• Act as Department Head for Communications and Development to include program management for non-infectious disease programs, communications, and fundraising and volunteer program team.
• Sign internal requests relating Department activities as requestor and non-infectious diseases program as administrator under supervision of Advisor
• Oversee Grant-funded Program Coordinator(s) and research assistant for non-infectious disease programs.

B. Program management (non-infectious diseases)
• Provide administrative and program management support, technical assistance and problem solving capacity as needed to grant or donor funded programs and initiatives at SHCH, especially those which work across departments or between SHCH and HOPE worldwide Medical Centers.
• Ensure grant management for existing non-infectious disease grant programs including but not limited to:
o Maintaining budget compliance in concert with the finance team;
o Overseeing M&E efforts for program performance.
o Preparing and managing calendar for donor reports, deadlines and other obligations.
o Collaborating with key grant managers and finance to ensure effective submission of reports.
• Working with finance team to prepare policies and procedure for grant management.
• Assist with funding research, project design and proposal submission for new and renewed initiatives.

C. Volunteer coordination
• Oversee administration of volunteer requests performed by International Volunteer Coordinator
• Maintain relationships with volunteer sending agencies including HVO, DocTours, Mayo Clinic and others.
• Maintain awareness of current policies and procedures relating to volunteer registration with relevant health professional councils in Cambodia.
• Develop and maintain organizational policies for volunteer management.

D. Fundraising and communications
• Lead efforts to increase donations to the hospital, including implementing strategies, monitoring results and recommending improvements. Actively contribute to the development of new fundraising initiatives and assist with events management- internal and external
• Oversee the timely publication of key communication pieces including Facebook posts, email newsletters and semi- and annual reports, prepared by the Communications and Fundraising Senior Clerk. Ensure that deadlines are met.
• Assist in preparing departmental publications including translation and graphic design. Ensure appropriate use of SHCH brand.



Winnie So
Associate Professor, Nethersole School of Nursing
Faculty of Medicine
The Chinese University of Hong Kong
President of Asian Oncology Nursing Society

Dr Winnie So is an Associate Professor of the Nethersole School of Nursing at the Faculty of Medicine, The Chinese University of Hong Kong. She is also a visiting professor of Shandong University of Traditional Chinese Medicine and Union Hospital. She received her Bachelor of Nursing from Deakin University, Australia in 1993; Master of Health Administration from the University of New South Wales, Australia in 1995; and Doctor of Philosophy from the University of Colorado, United States in 2007.

Dr So's research interest focuses on cancer and palliative care, especially in relation to supportive care needs, symptom experience and quality of life of cancer patients, cancer prevention and early detection of cancer. She has obtained more than HKD 11 million research funding, published 4 book chapters and more than 100 papers in peer reviewed journals such as European Journal of Cancer, Oncology Nursing Forum, Cancer Nursing, Supportive Care in Cancer and Preventive Medicine.

Currently, Dr So is the President of Asian Oncology Nursing Society (AONS) and a Council Member of The World Association for Chinese Quality of Life (WACQOL). She was a Board of Director (communication portfolio) and Chairperson of the communication committee of International Society of Nurses in Cancer Care (ISNCC) in 2012-16.

Talk Abstract: Complementary and alternative therapy for symptom mangament in breast cancer patients
Cancer and treatment related symptoms are distressful among breast cancer patients. Effective pharmacological and non-pharmacological symptom management are significant for reducing suffering and improving quality of life among these cancer patients. Complementary and alternative therapy (CAM) one of the most common non-pharmacological approach for symptom relief. The presentation will cosists of four parts. First, the concept of CAM and Traditional Chinese Medicine (TCM) will be introduced and differentiated. Second, modalities that commonly applied in breast cancer care and their effects on improving patient outcomes will be discussed. Third, the current development of TCM for cancer patients in Hong Kong and mainland China will be shared. Lastly, future development of CAM and TCM for symptom management in breast cancer patients will be discussed.

Talk Abstract: Supportive care needs among breast cancer patients throughout the cancer trajectory
Breast cancer is the leading type of cancer in women of both developing and developed regions. In the Southeast Asia, breast cancer is still the most common cancer with more than 107 thousand new cases and more than 43 thousand cancer death. Although survival has been improved, breast cancer patients yet demonstrate various supportive crae needs across the disease trajectory. This presentation will cover the evidence regarding the quality of life and factors that were associated with poorer quality of life among Asian women with breast cancer. Moreover, the most common unmet needs among these women will be identified and discussed. Findings from the evidence will be used to explain the importance of effective symptom management, communications with breast cancer patients, and how to improve quality of care via patient navigation and establishment of peer support group.



Yin Yin Htun
Founder/President,
Shwe Yaung Hnin Si Cancer Foundation
Yangon, Myanmar

Professor Yin Yin Htun is a Senior Consultant Physician, a Medical Oncologist and Clinical Director of Oncology at Pun Hlaing Siloam Hospital, Yangon, Myanmar. A previous recipient of a WHO Fellowship in Medical Oncology at the Royal Post Graduate Medical School and Hammersmith Hospital, London, UK. She is a retired Colonel and past Professor and Head of the Department of Medicine, and Consultant Medical Oncologist at No. (2) Military Hospital (500-Bedded), Yangon, Myanmar. Professor Yin Yin Htun is the Founder and President of Shwe Yaung Hnin Si Cancer Foundation, Myanmar, a non-profit organization founded in 2013 in dedication to her elder brother who died of pancreatic cancer. Although led by medical doctors, members include nurses, family members of cancer patients, cancer survivors and volunteers from general public. The foundation’s mission is to improve awareness on prevention and early detection of cancer. The foundation became a full member of Union International Cancer Control (UICC) in March 2015 and had actively participated in World Cancer Congress 2014 in Melbourne, Australia and World Cancer Congress 2016 in Paris, France and also a contributor for the country, Union of Myanmar for the World Cancer Declaration Progress Report 2016. She is also an active participant and lecturer at international conferences and workshops. She is the Executive Committee member of C/CAN 2025: City Cancer Challenge, UICC, Yangon City, Myanmar. She is actively doing collaborative works among the various stakeholders in Myanmar and internationally regarding the cancer control.


Malaysian Speakers



Chang Chu San
Founding Member, Pink InspirerS
Member of Breast Cancer Welfare Association Malaysia

Chang Chu San is a mathematics teacher at a public secondary school in Subang Jaya, Malaysia. Married with 2 sons, Chu San has been fighting her battle with breast cancer since 2008 when she was first diagnosed and subsequently in 2014 when it metastasised to the liver. As an individual living with advanced breast cancer, Chu San shares her experience and knowledge to promote a better understanding of the challenges faced by Advanced Breast Cancer patients. She is also supporting initiatives to advocate for better and lower cost of treatment by the government. Chu San is one of the founding members of Pink InspirerS, which is a group formed by Breast Cancer Welfare Association Malaysia (BCWA) to provide support to individuals living with Advanced Breast Cancer.

Talk Abstract: Challenges faced by Advanced Breast Cancer Patients
The issues faced by individuals living with Advanced Breast Cancer (ABC) are less understood compared to those encountered by patients with early breast cancer. Searching for the best treatment option at affordable cost is already a daunting task. This is usually coupled with managing the side effects of long term treatment while balancing a career, family needs and even daily routine activities. Having the strong support of family members, friends and relatives can give motivation and encouragement for the individual with ABC to continue to live life to the fullest. Such individuals worry whether their treatment plan will be effective or whether there may be a recurrence. Negative thoughts of this nature automatically pop up in their minds. Individuals with ABC find ways to develop positive coping skills, such as, cherishing happy moments like family bonding time during vacation, reasoning through spirituality, using inner strength to deal with whatever the outcome and living each day without regrets.



Cheng-Har Yip
Consultant Breast Surgeon,
Ramsay Sime Darby Healthcare
Emeritus Professor at University of Malaya
Malaysia

Dr Yip is currently a consultant breast surgeon in Ramsay Sime Darby Health Care in Malaysia, and is the lead clinician for the breast cancer research programme in the Cancer Research Malaysia, which is a charity based cancer research organization. Dr Yip retired from the University of Malaya in Sep 2012 where she was professor for 12 years, and was conferred Professor Emeritus by the University of Malaya in Oct 2016. She has over 200 publications in peer reviewed journals mainly on breast cancer in the Asian setting with an H index of 28. Dr Yip was the Chairman of the Development Committee of National Clinical Practice Guidelines for the Management of Breast Cancer in Malaysia in 2010. She was a past-president of the Association of University Surgeons of Asia (2003-2005) College of Surgeons of Malaysia (2010-2013) and the immediate Past President of Breast Surgery International, a member organization of the International Surgical Society. Although a clinician, Dr Yip is very involved in cancer control and prevention, and was a past President of the Asia Pacific Organization for Cancer Prevention. (2010- 2012) She has been appointed an expert in cancer control by the World Health Organisation and the International Atomic Energy Agency (IAEA), and has been on expert panels in international organizations such as the International Cancer Control Conference, and the Breast Health Global Initiative. She is a member of the Executive Committee of the Breast Cancer Welfare Association of Malaysia. She was awarded honorary fellowship from the American College of Surgeons in Oct 2013 and from the American Surgical Association in April 2017.



Ednin Hamzah
Chief Executive Officer, Hospis Malaysia
Vice Chairman,
Asia Pacific Hospice Palliative Care Network
Member of the Board of Trustees,
Worldwide Hospice Palliative Care Alliance

Dr Ednin Hamzah is the Chief Executive Officer of Hospis Malaysia, a position he has held from 1997. Dr Ednin graduated in medicine from the University of Newcastle upon Tyne, United Kingdom in 1986 and had worked in internal and family medicine in the United Kingdom prior to returning to Malaysia in 1997.

Clinically, he leads the largest community palliative care service in Malaysia. He teaches palliative care in several universities at both undergraduate and postgraduate levels. Nationally he has been involved in palliative care, cancer control and pain management and has been on the Boards of several National Organisations. He is active in international palliative care education and advocacy and is the current Vice Chairman of the Asia Pacific Hospice Palliative Care Network and a member of the Board of Trustees for the Worldwide Hospice Palliative Care Alliance.



Ho Gwo Fuang
Associate Professor & Consultant Clinical Oncologist/Radiotherapist,
University Malaya Medical Centre
University Malaya Specialist Centre

Dr Ho Gwo Fuang is an Associate Professor and clinical oncologist/radiotherapist at University Malaya Medical Centre and University Malaya Specialist Centre, Kuala Lumpur, Malaysia.

He was trained at Barts and The London National Health Service (NHS) Trust and The Royal Marsden NHS Trust in London. He attained his Certificate for Completion of Specialist Training (CCST) in 2007 and joined the Faculty of Medicine at University Malaya. He was the recipient of the Joint Commission International (JCI) Outstanding Young Malaysian Award in 2009 for medical innovation. He is the oncology lead for Centre For Image Guided & Minimally Therapy (CIGMIT) stereotactic radiosurgery project at the University, as well as sub-investigators for University Malaya’s High Impact Research (HIR) Grant projects.

His research interests involve breast, gastrointestinal and gynaecological cancers. He is involved in many national and international collaborative research work. Being a council member of Malaysian Oncological Society (MOS) and Together Against Cancer (TAC), he champions cancer patients' rights in Malaysia.



Imi Sairi Ab. Hadi
Consultant Breast & Endocrine Surgeon,
Raja Perempuan Zainab II Hospital (HRPZ II)
Kelantan

Dato’ Dr Imi Sairi Ab Hadi is a Consultant Breast and Endocrine Surgeon and National Deputy Head of Breast and Endocrine Surgery Services. He obtained his Degree of Medical Doctor (M.D) in 1994 and Master in General Surgery in 2001 from National University of Malaysia. He subsequently pursued his Fellowship in Breast and Endocrine Surgery from Royal Victoria Infirmary, Newcastle Upon Tyne, United Kingdom; under The College of Surgeons England in 2006.

Currently he is one of the National Trainers and based in Hospital Raja Perempuan Zainab II, Kota Bharu, where he pioneered in the development of Breast and Endocrine Surgical Training Hub at the East Coast of Malaysia. Because of his high commitment in the national service development, he was recently appointed as The Chairman for National Breast and Endocrine Chapter, under the umbrella of The College of Surgeons of Malaysia and also was appointed as The Honorary Secretary-Treasurer for The Asian Association of Endocrine Surgeons.



Jacqueline Wong
Consultant Pathologist,
Sarawak General Hospital
Kuching

Profile Coming Soon



Lim Teck Onn
Vice Chairman, Together Against Cancer Malaysia

A graduate of MBCHB University of Glasgow, MRCP (UK), FRCP (Edinburgh) and a Master of Medical Statistics from the University of Newcastle Australia.

Formerly a consultant nephrologist and director of the Clinical Research Centre Ministry of Health Malaysia, he is currently the senior partner in Yun Consulting; and serves as consultant to many companies in the Biotech, Pharmaceutical, Medical device and Healthcare industry as well as to Government agencies in variety of areas including Medical product development, Health policy & Healthcare research.

Dr Lim has been a WHO Consultant for clinical research to China (TCM Research Institute Beijing 2002-2003), consultant on clinical research to the Aga Khan University (2005 and 2006), University Medical Centre HCM & MOH Vietnam (2007, 2008), Ministry of Health Brunei (2007, 2008), King Saud University College of Medicine Saudi Arabia (2009), University of Ruhuna Sri Lanka (2010. His other appointments include as Adjunct Professor at IMU and subject editors for various medical journals.

Throughout his career he has been active conducting health research on disease burden, healthcare performance and economics. He has more than 60 research publications in reputable international journals. His paper entitled “Assessing Doctors’ performance: Application of CUSUM technique in monitoring doctor’s performance. International Journal of Quality in Health Care 2002; 14:251-8” was nominated as best paper published for the Peter Reizenstein Prize, a first for Malaysia in association with the journal.



Maheswari Jaganathan
Breast Cancer Patient Navigation Programme Coordinator,
Cancer Research Malaysia

Education:
Bachelor of Nursing Science with Honors (Jan 2013- Dec 2016)
Major: Oncology, Mental Health & Emergency and Trauma Nursing
Institution: Open University Malaysia
Research Projects:
Breast Cancer Patient Navigation Programme (Jul 2011 – Present)

Notably, there remain major disparities in survival outcome from breast cancer in Malaysia. It is estimated that the 5-year survival for breast cancer in Malaysia is 49% in some communities compared to >85% in some private hospitals. Studies in psychosocial factors show that fear, poor health education and lack of empowerment of Malaysia women are major reasons why women delay or default treatment. Thus, opportunities to improve decision-making and to support breast cancer patients can have potentially large impact on survival, especially in communities experiencing poor survival. In order to address the challenges of late presentation and poor adherence to evidence based treatment, Cancer Research Malaysia identified the patient navigation programme as a potential community based solution to improve survival of breast cancer in Malaysia. Patient navigation was founded at the New York’s Harlem Hospital Center by Dr Harold Freeman to improve cancer mortality rates among the poor and underserved in New York.

In order to establish the patient navigation programme in Malaysia, Cancer Research Malaysia sought to establish a demonstration project. A number of public hospitals were shortlisted for consideration and the Hospital Tengku Ampuan Rahimah was chosen because it served a broad base of patients (approximately 130 breast cancer patients per year) despite being low resource center. HTAR is the main tertiary referral centre in Klang, serving a population of 1.27 million Malaysians. The centre has served an increasing number of breast cancer patients, growing from 59 in 2002, 106 in 2006 to 147 in 2014 (increase of >200% in 12 years). Notably, the stage at presentation has remained unchanged, with approximately 50% of patients diagnosed at stage III or stage IV.The Pink Ribbon Centre at Hospital Tengku Ampuan Rahimah was officiated in January 2015. The first demonstation Model for Malaysia. The programme now has evolved to Phase ii ( Primary Care) and will be testing Phase iii by end of 2018 ( Community Intervention).



Nirmala Bhoo Pathy
Associate Professor of Epidemiology,
Department of Social and Preventive Medicine, Faculty of Medicine, University of Malaya
Visiting scholar, Queen’s University Belfast

Nirmala Bhoo-Pathy is currently an associate professor of epidemiology in the Faculty of Medicine, University of Malaya, and a visiting academic at Queen’s University Belfast, United Kingdom.

Dr Bhoo-Pathy’s career is focused on optimising life after cancer through research on cancer survival, treatment outcomes and patient-centred outcomes. To date, her research has been crucial in not only improving the understanding on cancer prognosis and patients-centered outcomes in Asian settings, but also in facilitating evidence-based oncology practice and cancer policy-making in the region.

Dr Bhoo-Pathy graduated as a medical doctor from the University of Malaya. Following a fellowship award from the European Union, she completed her master’s degree in clinical epidemiology, cum laude, and a PhD in cancer epidemiology from the University of Utrecht, Netherlands.



Norija Sapiee
Breast Care Nurse,
Sarawak General Hospital
Kuching

Sister Norija Sapiee has started her career as a nurse in 1992 after completing a nursing diploma course at the School of Paramedic Kuching. In 2016, She’s graduated with a degree in Bachelor of Nursing Science at Open University Malaysia. Since 2008 she has been work as a Breast Care/ Councelor Nurse at Sarawak General Hospital. She’s also an actively involved in Breast Cancer Support Groups of Sarawak's General Hospital where she has been involved in planning and organizing the program for Breast Cancer Awareness.



Nur Aishah Binti Mohd Taib
Senior Consultant Breast Surgeon,
Department of Surgery
University of Malaya
Malaysia

Prof Nur Aishah Mohd Taib is a professor of the Department of Surgery in University Malaya since 2012. (MBBS(UM) 1995, Masters of Surgery(UM) in 2001). She has over 100 publications in peer-reviewed journals. Her areas of interest are strongly correlated with patient care and outcomes. She published one of the earliest publications on breast cancer outcomes in Malaysia. She underwent Clinical Observation at the MD Anderson Cancer Centre, Houston Texas, USA in 2009, completed a Graduate Diploma in Genetic Counseling from Charles Sturt University in Australia in 2010.

She completed her Doctor of Medicine doctorate in University Malaya; understanding why women present with advanced breast cancer- a mixed method study in 2012. This resulted in a publication on grounded explanation on why women present with advanced breast cancer in World Journal of Surgery in 2014. Two models emerged from this qualitative study explaining the points of delays in the journey of a breast cancer patient and an explanatory model on decision making to delay at these points of delay. Working with a consumer advocate she had since translated her findings to a navigation video to provide information and navigation on cancer treatments in University Malaya Medical Centre in 2014. Since then, a breast care nurse led orientation programme utilizing this video to orientate newly diagnosed patients on treatment, admission, discharge and follow-up processes. This video is available on the UMMC Breast Cancer Resource Centre youtube channel. This work had won a special jury prize at the national quality convention in 2014 in Johor Bharu, Malaysia and had been presented as a plenary at the world congress of psycho-oncology in Washington in 2015.

In 2012, the UM breast research team was awarded the Ministry of Education of Malaysia High Impact Research Grant amounting RM 25 million for a period of 5 years. This programme resulted in 96 Tier 1 and 48 non-Tier 1 publications. The main contributor to this team is The Malaysian breast cancer genetics (MyBRCA) study lead by Cancer Research Malaysia has provided Asian patients to contribute to involved international research consortia, this study has mapped the genes that cause excess familial risk of breast cancer and now ovarian cancer in Malaysia. A study is currently underway to provide decisional support for risk reducing mastectomy and risk reducing bilateral salpingoopherectomy. Aside from that, epidemiological studies resulted in collaborations with NUH Singapore resulting in understanding breast cancer prognostic factors in the Southeast Asian region.

In 2012, the Malaysian Breast Cancer Cohort (MyBCC) study looking into lifestyle prognostic factors amongst Malaysian breast cancer survivors. To date we have about 600 patients recruited into this study. The group have also embarked on a community engagement programme that have run successfully in 2014 and 2015. This is a one day programme for breast cancer survivors in the community to learn about scientific evidence on what can help them to lead full and healthy lives. Results from the MyBCC study are shared with the participants at this forum. With a multidisciplinary and international team of researchers and clinical practitioners UMMC has recently embarked on a onco-rehabilitation programme for breast cancer survivors. Our research focus for the coming years will focus on providing evidence for effectiveness of these programmes and in the long term looking at lifestyle factors affecting outcomes.

Prof Nur Aishah is a trainer for Masters of Surgery in Malaysia and is on the board of examiners for the exit viva for the Breast and Endocrine Surgery Subspecialty Exams in Malaysia. She is the Honorary Treasurer and a second term council member of the College of Surgeons of Malaysia (2015-present. She is Chairperson of the Breast Chapter, College of Surgeons of Malaysia (2015-2018). She is a life member of the Malaysian Oncology Society of Malaysia and a member of the International Surgical Society.



Ranjit Kaur
President, Breast Cancer Welfare Association Malaysia
Chairman, Together Against Cancer Malaysia
Board Member, Reach to Recovery International
Executive Committee Member, Advanced Breast Cancer Global Alliance

Ms Ranjit Kaur, a breast cancer survivor since 1998, obtained a basic qualification in Physiotherapy and a Master of Science degree in Community Disability Studies (University College London, UK) in 1996. She is the President of Breast Cancer Welfare Association Malaysia and Chairman of Together Against Cancer Association Malaysia. Ranjit is a Board Member for Reach to Recovery International, a global breast cancer support programme. She was elected onto the Executive Committee of the Advanced Breast Cancer Global Alliance in December 2017, representing low, lower middle and upper middle-income countries.

Ranjit conducts training in peer support in cancer care. Her article on Cancer - My Personal Account was published in The Lancet, Issue no. 9472, May 14th 2005.

She was conferred the 2004 Outstanding UICC Volunteer Award by the Union for International Cancer Control and the Theresa Lasser Award conferred by Reach To Recovery International in 2011.



Rokayah Julaihi
Consultant General Surgeon,
Sarawak General Hospital (SGH)
Medical Advisor, SGH & Pink Ribbon Support Group, Kuching

Dr Rokayah Julaihi is currently serving as a Consultant General Surgeon with breast interest at Hospital Umum Sarawak. She graduated with MBBS from University of Malaya in 1999 and obtained her Masters of Surgery from University Kebangsaan Malaysia. She has been working in Hospital Umum Sarawak since 1999. She manages many breast cancer patients as she was the only female surgeon during that time. She is also serving as Medical Advisor for Breast Cancer Support Group Hospital Umum Sarawak. She is also actively involved as Medical Advisor in NGOs such as Pink Ribbon Support Group Kuching and previously in Sarawak Breast Cancer Support Group. As General Surgeon, she always collaborate in MDT discussion with Breast and Endocrine experts especially in managing difficult breast cancer cases.



Saunthari Somasundaram
President & Medical Advisor,
National Cancer Society of Malaysia
Board Member Union for International Cancer Control (UICC)

Dr Saunthari Somasundaram (MBBCh, BAO, LRCPI, LRCSI, MBA)
• President and medical advisor, National Cancer Society Malaysia (NCSM)
• Board member, Union for International Cancer Control (UICC) 2014 - present
• Board member, International Cancer Information Service Group (ICISG) 2016 - present
• Board member, ASEAN Non-Communicable Disease (NCD) Alliance, 2016 - present
• Host committee chairperson, World Cancer Congress 2018

With over 20 years’ experience in cancer control, Dr Saunthari Somasundaram advocates for the awareness, prevention, early detection and survivorship of cancer. Within Malaysia, these initiatives are driven through the National Cancer Society of Malaysia (NCSM) in its education, care and support programmes. NCSM is also hosting the World Cancer Congress in 2018.

Dr Somasundaram studied medicine in Dublin, Ireland, and has an MBA from the University of Bath. Locally, she is also on the board of the Secretary of the Malaysian Women’s Action Tobacco Control and Health (MyWatch), the Malaysian Council for Tobacco Control, and on the steering committee of NCD Malaysia.

The accumulation of skills and experience in the clinical, educational, operations as well as counselling aspects in cancer control has provided her a comprehensive picture of the benefits, challenges, needs and gaps of cancer control in ASEAN.



Sri Ganesh Muthiah
Public Health Specialist & Medical Lecturer (Epidemiology)
Department of Community Health
Faculty of Medicine and Health Sciences
University Putra Malaysia
Selangor, Malaysia

Dr.Sri Ganesh Muthiah is a Public Health Physician and a Medical Lecturer (Epidemiology), at the Faculty of Medicine & Health Sciences, University Putra Malaysia (UPM). He is also the founder of Cancerfly Networks, a social innovation established to provide better quality of life to cancer patients through employment and business opportunities. This social innovation was awarded the ‘Best Invention of Malaysia’ and the ‘Romanian Inventors Forum Special Award’ at the International Invention Innovation Competition Canada (ICAN 2016).

Talk Abstract: Back to Work
The World Health Organization (WHO) reported that globally, 14 million people were diagnosed with cancer in 2012. The diagnosis of cancer does not only lead to adverse effects on patients’ physical and mental health, but also on patients’ financial stability. The tertiary prevention strategy to rehabilitate patients and survivors to achieve better quality of life through employment opportunities is still an untapped reservoir.

The Cancerfly Employment Portal (www.cancerfly.com), is a social innovation established in Malaysia in February 2017, with an aim to enable cancer survivors to obtain better quality of life through financial independence. Through this portal, cancer survivors are able to seek employment or business opportunities. This innovation was awarded the ‘Best Invention of Malaysia’ and the ‘Romanian Inventors Forum Special Award’, at the International Invention Innovation Competition (ICAN 2016) in Toronto, Canada.

The 5 year survival rate of cancers have dramatically improved over the past decade. With better survival rate, there are indeed many gaps to be filled in the current healthcare system where cancer survivors should be able to return to work, to be financially independent and subsequently enjoy better quality of life. There is an urgent need for policymakers to look into issues related to unemployment among cancer survivors.



Suhaida Musthaffa
Head Nurse, Breast & Gynecological Cancer Day Care
Ambulatory Services
University Malaya Medical Centre

Name : SUHAIDA BINTI MUSTHAFFA
Position : WARD MANAGER
Department : NURSING
Faculty : UMMC ( MEDICINE )

Acedemic Qualifications Obtained:
Diploma in Nursing, University Malaya Medical Centre



Voon Pei Jye
Consultant Medical Oncologist
Sarawak General Hospital
Kuching

Dr Voon Pei Jye is currently Consultant Medical Oncologist with Hospital Umum Sarawak, Kuching, Sarawak. He read medicine at Universiti Malaysia Sarawak and graduated in 2001. He undertook training in Internal Medicine and obtained his MRCP (UK) and Master of Medicine (Internal Medicine) from National University of Singapore in 2007. Dr Voon was later gazetted as Internal Medicine Specialist. Subsequently, he completed his advanced specialist training in Medical Oncology from National University Hospital Singapore in 2012

He is principal investigator and co-investigator for numerous international multi-center cancer trials. Dr Voon has published in peer reviewed journals encompassing NEJM, Molecular Cancer Therapeutics, BJCP etc. and also co-authoring numerous presentations in national and international scientific meetings including ESMO, ASCO meetings. He is an independent reviewer for Medical Research Ethical Committee (MREC) and also sits in Malaysia Adverse Drug Reaction Committee (MADRAC). In addition, he is the co-opted member of Medical Oncology for National Specialist Registry Malaysia. He also contributed to the National Strategic Plan for Cancer Control Programme 2016-2020.



Yusof Abdul Wahab
Consultant General Surgeon,
Hospital Tengku Ampuan Rahimah, Klang
Head of Surgical Services, Ministry of Health
Malaysia

Dato Seri Dr Mohd Yusof, born and breed in Negeri Sembilan, received his early year education in St Paul Institution Seremban. Completing his MD with University Sains Malaysia in 1987, he commenced his medical career as an intern in Hospital Seremban. Dato Seri has served Ministry of Health for the last 31 years, with placements in hospitals such as Muar and Tanjung Karang. His final pit-stop was HTAR Klang, where he completed his FRCS in 1995, qualifying as a general surgeon. His calling was to be a generalist; dedicated to his trade with an undying passion for his profession. He has successfully managed a high volume centre, HTAR Klang, as head of department for over 15 years whilst simultaneously upholding his responsibilities as Selangor state head of surgical services. His special interest lies in minimally invasive surgery (MIS), especially laparoscopy in trauma and VATS. He believes that in this era, the option of MIS should be offered to all patients whenever appropriate. He is also a pioneer in initiating the patient navigation program for breast CA in Malaysia, with the aim of improving diagnostic and treatment timeliness. He was appointed as the national advisor for general surgical services by MOH Malaysia in October 2017.